CF clinics are held monthly or every 2-3 months depending on Simon’s well being. During each visit, Simon is reviewed by his team made up of nurses, doctors, physiotherapists, a dietician and social worker.

Clinic appointments involve height, weight, lung function test, sputum sample collection, a collection of scripts and medicine alongside other tests depending on previous results requested by the doctor.

Here is a brief inside scoop of what happens inside the clinic.